faparents.org FA Parents' Group

faparents.org
Title: FA Parents' Group
Keywords: fa, friedreich, ataxia, parents, group, fara, naf, fapg
Description: Friedreich's Ataxia Parents' Group Website
faparents.org is ranked 19889488 in the world (amongst the 40 million domains). A low-numbered rank means that this website gets lots of visitors. This site is relatively popular among users in the united states. It gets 50% of its traffic from the united states .This site is estimated to be worth $5,467. This site has a low Pagerank(0/10). It has 1 backlinks. faparents.org has 43% seo score.

faparents.org Information

Website / Domain: faparents.org
Website IP Address: 216.119.69.177
Domain DNS Server: ns2.webcontrolcenter.com,ns1.webcontrolcenter.com

faparents.org Rank

Alexa Rank: 19889488
Google Page Rank: 0/10 (Google Pagerank Has Been Closed)

faparents.org Traffic & Earnings

Purchase/Sale Value: $5,467
Daily Revenue: $14
Monthly Revenue $449
Yearly Revenue: $5,467
Daily Unique Visitors 1,378
Monthly Unique Visitors: 41,340
Yearly Unique Visitors: 502,970

faparents.org WebSite Httpheader

StatusCode 200
Content-Type text/html; charset=UTF-8
Server Microsoft-IIS/7.0
Date Thu, 28 Jul 2016 04:59:12 GMT

faparents.org Keywords accounting

Keyword Count Percentage
fa 22 1.32%
friedreich 1 0.30%
ataxia 6 1.08%
parents 6 1.26%
group 8 1.20%
fara 4 0.48%
naf 2 0.18%
fapg 2 0.24%

faparents.org Traffic Sources Chart

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FA Parents' Group Home About FA Mailing List Living with FA Our Families Research Fundraising Links Search Members FA Parents Group History and Introduction In September of 1997, a small group of FA parents had been coming together via email to share questions, support and information about Friedreich's Ataxia. Since then, our online support group, FAPG, has grown to an international group that now includes parents and guardians of children with other childhood-onset ataxias. Email is a great forum for support and has remedied the isolation and loneliness many of us feel dealing with the challenges of raising children with these degenerative diseases. This website provides another forum for us to share our unique experiences and knowledge of how we've learned to cope with ataxia in our family. If you are the parent of a child with FA or an undiagnosed ataxia, we invite you to join our free email support group. Fill out and submit the form on the membership request page. We welcome you to explore this site to learn about other families like yours! To learn about important upcoming events, visit the FARA and/or the NAF events pages. Are You the Parent of a Newly Diagnosed Child? If you would like to view resources for families with a newly diagnosed child check out these resources: A Message for Newly Diagnosed Patients and their Families on the FARA website. A Guide for Parents of a Recently Diagnosed Ataxian on this website. "Keeping Kids Healthy", featuring three families and their children who have FA. Participation in clinical trials is VERY important. For FA’er parents please have your child join the FARA (clinical trial) Registry and for other ataxia related disorders join the NAF registry. Recent News A Parent's Perspective: "My daughter was diagnosed at 15. She has managed much better than I expected. Life with FA is what she knows, and although she sees her friends doing things differently than she does, I really am not sure she would change places with any of them. She is nearly 29 now. She is living with her service dog in a small house. She has completed high school and college, and lived on her own since then. She has written a novel and is working on a second and she took up painting and has done several for friends. She loves and is loved by a batch of friends across the country. She has made a difference, making sure services for the disabled are working the way they should. She's a pretty powerful force, when she chooses. There are better possibilities for our kids than many neurologists might have us believe. This isn't a death sentence. It will complicate some areas of your life, but it may also bring to you awareness of blessings you might have overlooked. On some days, I feel pretty OK about where we all are. On some days, I am in a pit! FAPG is the one place you can come and share whatever feelings you are having on any particular day, and someone in this group will reach out a hand and open a heart and hold your feelings with understanding and compassion. My advice for the moment is just take the smallest bit of this that you can handle for now. You don't have to learn everything this moment. You have time to absorb this and learn what you will want to know. Welcome to the best group you never wanted to belong to! We are here for you!" FA Parent - Wendy Questions? Contact Us Donate to FARA

faparents.org Whois

Domain Name: FAPARENTS.ORG